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Orphanet Journal of Rare Diseases | Full text | A population-based registry as a source of health indicators for rar…http://t.co/gR8l21AIvA
Orphanet Journal of Rare Diseases | Full text | A population-based registry as a source of health indicators for rar…http://t.co/gR8l21AIvA
Registros poblacionales como fuente de indicadores para #enfermedades_raras. Region del Véneto http://t.co/RHBiCMFozQ @FEDER_ONG...
#raredisease RT @RareDR: the ten-year experience of the Veneto Region's rare diseases registry http://t.co/tk4cjiyjPN
Benefits of a population-based registry as source of health indicators for rare diseases http://t.co/CRuPA4py1M #raredisease #genetics