The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project

Overview of attention for article published in Research Involvement and Engagement, February 2021

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In the top 5% of all research outputs scored by Altmetric
High Attention Score compared to outputs of the same age (93rd percentile)
High Attention Score compared to outputs of the same age and source (87th percentile)

So far, Altmetric has seen 4 news stories from 4 outlets.

Osaka University leads promising Japan-based study into use of ICT (Information and Communication Technology) for active…

Figure 1. (A) Sample view of top page; research participants register for an account and log in to the research website from…

Osaka, Japan - No one truly knows the experience of suffering a disease better than the patient.

leads promising Japan-based study into use of ICT (Information and Communication Technology) for active, collaborative patient…

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